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January 25, 2024; Alec Koujaian and his father Harry, play on a game table in the “Man Cave” of their home in Prospect Heights, IL. Alec has Niemann-Pick Type C (NP-C) disease and is going through a series of treatments with an experimental drug at Rush University Medical Center in Chicago. In 2020, Alec’s sister, Hayley Koujaian, passed away from NPC at the age of 20. (Photo by Barbara Johnston/University of Notre Dame)
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