BJ 1.25.24 Rare Disease 1166.JPG
January 25, 2024; Gail Koujaian looks at a photo Hayley in Haley’s bedroom at their Prospect Heights, Illinois home. Her son Alec has Niemann-Pick Type C (NP-C) disease and is going through a series of treatments with an experimental drug at Rush University Medical Center in Chicago. In 2020, Hayley Koujaian passed away from NPC at the age of 20. (Photo by Barbara Johnston/University of Notre Dame)
Copyright University of Notre Dame
Copy link below when linking to original image:
https://photos.nd.edu/image/I0000T30L0e3YSno
Keywords: