BJ 1.25.24 Rare Disease 1189.JPG
January 25, 2024: A collage of photos of Haley over the years in her bedroom at the Koujaian’s home in Prospect Heights, IL. Hayley Koujaian passed away from Niemann-Pick Type C (NP-C) disease at age 20. (Photo by Barbara Johnston/University of Notre Dame)
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